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             Words of wisdom from multiples, their friends & families
                               (plus several scientific essays)     All articles and essays are owned by their writers.                                 


Then... What Am I?  by Jennifer Lee Combies
I talk about my existence as a whole separate person within a multiplicity system

The Klatch, Medication, and Death  by Julie Rae Combies
We were misdiagnosed with various mental illnesses and put on medication that harmed us 

Things I Can't Stand   by Luna Diana Combies
I talk about the frustrating behaviors of singlets and other outsiders 

We Are Not DID Or MPD by Miakoda Celena Combies
I analyze the definitions of DID and MPD and i;llustrate how we do not fit either!

SEARCHING FOR CONVERGENCE Here's some "scientific" research

 
What is activism by Mark & GY


One Brain, 2 Selves  More scientific" stuff A new Model of DID even more scientific talk

An International Model-  scientific article (can't get link to work, scroll to bottom)
 
A New Model Scientific article giving new meaning(can't get link to work, scroll to bottom)
 


 


 

 
4. (Philosophy) a self-conscious or rational being.
5. the actual self or individual personality of a human being...

 
What I know about “person”....

People feel. They can feel love. They feel hurt. They can feel angry. They can feel many many emotions.

People dream. They dream about things they wish they could do. They dream about the future. They dream about so many many things.

 People think. People think about what they are. People contemplate the world around them. People think many things.

 What I know about myself...

 I feel. I have m y own emotions that are my own, all my own, and no one else’s. I can feel happy, I can feel angry, I can feel hurt.

I dream. I have dreams of my own, all my own, and no one else’s. I dream someday being seen for who I am. I dream of beating all 3 USA Super Mario titles on the NES. I dream of not having to worry what outsiders want with me. I dream of many things.

I think. I have thoughts that are my own, all my own, and no one else’s. I think about what I am. I think about who I am. I think about why people don’t see me as me. I think about wh
y people have to go out of their way to tell me what I’m not.

 If I can do all those things, feel, dream, and think, then on what grounds do people insist I am not a person?

 Outsiders say I am part of a person, but I am not. I don’t think like the person I’m supposedly part of. I don’t feel like the person I’m supposedly part of. I don’t dream like the person I’m supposedly part of.

 Outsiders say
I am a symptom of some horrible disorder someone has. Symptom? A runny nose doesn’t have a will to live. An itchy eye doesn’t dream of anything. A fever doesn’t feel sad when you take flue medicine.

 If I’m not a person... then I ask you.... What am I?

 What makes me not a person?

 Jennifer Lee Combies
The JC Klatch
© Copyright 2012 Jennifer Lee Combies (UN: particlechild at Writing.Com). All rights reserved. 
Jennifer Lee Combies has granted Writing.Com, its affiliates and syndicates non-exclusive rights to display this work.

 
We are The JC Klatch. Our story begins at our body's birth. To the best of our knowledge, we were born multiple. We remember each other from as far back as any of us can remember. I won't be including our entire story here in this article. I will be discussing the effects erroneously prescribed medication had on us.

When our body age was merely two, our mother claims to have witnessed us colliding in to walls at times, and rarely able to pay attention. The notion that we couldn't pay attention simply doesn't add up, as our mother also describes how we would spend hours upon hours at a time playing with Lego blocks. She also has told us about how sh
e would approach to shut off a TV she was ab solutely sure we weren't actually watching, as we were busy with toys, only to be shocked to have the entire episode of "Bill Nye The Science Guy" she had just interrupted recapped back to her accurately. What she was witnessing was not a lack of attention. It was, instead, several people in the same body who each have different interests and the ability to co-front, with two or more persons paying attention to entirely unrelated things simultaneously. The colliding with walls, I'm sure was simply due to the fact that we hadn't yet learned to co-operate with our one shared body. Try having two people drive the same car in opposite directions at once, and you'll quickly learn what an air bag looks like.

 This lack of attention, along with other supposed "symptoms" such as hyperactivity lead us to being slapped with an overused diagnosis called Attention Deficit Hyperactive Disorder. We definitely do not, and did not, have A.D.H.D, but we were quickly put on medication anyhow. Medication doesn't always work the same on multiples as it does on singlets, and rarely has the intended affect on people who don't have the disease or disorder the medication is for. This was no exception. The medications we were forced to take over the course of our body's childhood and adolescent years included Ritalin, Dexadrine, Welibutrin, Zoloft, and one medication the name of which eludes me.

The side effects of some of those medications included intrusive thoughts, and thoughts of suicide and even thoughts of homicide. Other side effects they had on our system was to almost entirely suppress our ability to switch. One of us in particular was front nearly 10
0 percent of the time. Only certain members of our system could come and go at all, but with great difficulty. The rest of us rarely saw the light of day.

Being front nearly
every moment of every day may sound normal to a singleton. If you are a singlet reading this, you're used to always being out front. For many multiples, if one member is front too much, he or she gets worn out, tired, burnt out. This constant feeling of exhaustion can take a toll on somebody, shortening their fuse, angering and frustrating them. After a while, this one system member resented there were others in this system.

When we we
re able to make our way front, no one ever heard us. We tried to tell outsiders we were here, and tell them the medications were hurting us. Our guidance counselors at school had spoken to Rebecca, and Jenn, but never acted or relayed anything to our mother. If any of us used our own names or spoke of others in our system, we were accused of lying. I had been front for several visits to psychiatrists. I, being mute, was always accused of just sitting there and not talking. I communicated, but they only listened for spoken words.

When the body was 18, the medication was finally discontinued. You can't make an adult take medication. The damage, however, was done. We spent the next several years slo
wly regaining our strength within the system. Slowly but surely we were able to switch somewhat smoothly again.

Fast forward t
o today. There are still permanent effects left from the medication we never needed. First and foremost, we are missing a member of our system. The medication lead to a member's death. We've been told members within a system can't individually die. That is untrue. We saw this one die and none of their memories were "recovered" when they died. This system member is gone. When we switch, our body twitches horribly, and if we switch too much, it will go into convulsions. Miakoda has an audible tic which tends to sound like a yelp or a shriek. Katelynn sometimes goes in to convulsions that are extremely terrifying for her. Insomnia is something we all frequently cope with. Spacing out plagues most of us at times. Short term and long term memory problems is another effect left from the medication.

Medicating what isn't fully understood is never the answer unless a life really is at stake. I can hardly see how a "lack of attention" would have been life threatening. Our system will never again take any "mind" prescriptions.

Julia Rae Combies

 The JC Klatch
© Copyright 2012 Julie Rae Combies (UN: curiouslymute at Writing.Com). All rights reserved. 
Julie Rae Combies has granted Writing.Com, its affiliates and syndicates non-exclusive rights to display this work.


Things That I Can't Stand
OR
How Not To Treat M
embers of Multiplicity Systems


It hurts when outsiders tell me I'm just an act. I think, I feel, I dream. I am real, by every sense of the word. 
Nothing drives me crazy quite like people insisting one of us becomes another of us.
No, I still exist when I'm not front. I'm inside, not dead. 

It really angers me when singlets use co-fronting, matching likes, or any other dumb thing as “proof” that we aren't multiple. Yes, Miakoda and I like similar music. Yes, you will hear two voices or a blend of voices if two
of us co-front. Yes, Miakoda and Lilly are both allergic to carrots. These things prove nothing. Don't people like similar things to their friends? If two people talk in the same room, I hear both of voices. Don't health concerns run in families?

I hate when ou
tsiders insist on using our legal name despite knowing who's front! I have a name. I like my name. I would appreciate it if people didn't try to force another name on me. I'm fairly certain my headmates feel the same way about their names. 

It's infuriating when outsiders ignore me until the one they want to talk to is front. I'm a person too. Talk to me, I won't bite. I promise.

 I can't stand being asked “Who's the real one?”. Easy! ALL of us are real.

I hate when singlets or even other multiples cram us in to a little box labeled “D.I.D.”.  We're not dissociating, we're not just a bunch of identities, and we function in quite an orderly fashion. We're farther from “Dissociative Identity Disorder” than most singlets I know. How can our mere existence as a group be a “disorder”? I have nothing against D.I.D. systems. I just don't like labels that don't belong to us being applied to us.

 It drives me up a wall when outsiders, including other multiples, insist our abuse is where we came from. We're in here, and have been in here the whole time we've been in here!  We're the best to know where we came from. It's as if we aren't valid if we existed first and were abused later. The abuse scarred us, but it certainly didn't make our system.  It also implies that a person is their abuse. 
Sorry to dis
appoint, but I was born here when the body was born.

 I can't stand being called an “alter”, a “personality”, or a “part”. I'm a person. I'm not somebody's “alternate personality”, and I am definitely not a “part” of somebody. I am a somebody entirely of my own. I am a person.
The fastest way to enrage any one of us is to throw that god awful word “fragment” at any of us!
In our system, thes
e words are about as bad as any other slur. They're used by “normals” and therapists to convince the people in a multiple system that they are not people, just symptoms, so they won't object to being killed off in a process called “integration”.
The absolute worst excuse is the phrase, “But I need a way to differentiate you from real people”. 

I am tired of “When will you go to a therapist?” and “Will you be integrating soon?”.
First off, if any of us did seek a therapist, it wouldn't be for being multiple and it wouldn't be any outsiders' business. Second, no, we have no intention of killing off all but one of us. Askin
g a question like that really just says “I can't stand that there are many of you. Fix it.”. That doesn't make any of us feel good at all. 

I can't stan
d singlets pitying me. “It must be so hard not knowing what's going on” or “It must be frustrating fighting for time outside” are some of the most degrading things frequently said to me and mine. Being one of many in a single body is all I've ever know. I've never been a singlet. Quite honestly, I can't imagine what it's like to have to be front 24 hours a day, 7 days a week, without one second of a break. I  can only guess it might be nice to dye your hair if you wish, but I can tell you it's a life saver to step away from a toothache for a while when waiting to get to the dentist. It's also an amazing experience to take my loved one out of that same toothache and give her a break.

I hate when singlets assume
my change in mood is a switch. No, if you just ticked me off and I got mad at you, I'm mad at you. That's just how life works. Make somebody mad, they're mad. Singlet or multiple, everyone has hot buttons and breaking points. 

It drives m
e up a wall when people insult my headmates to me.
My headmates are my family. Don't trash talk my family!

 So if I hate all these things, what is it I do like?

 I love it when somebody takes the time to ask me my name when meeting me the first time, especially if they had just initially met someone else in my system. This is the best first step in getting me to like you! If you don't recognize when I'm front, no biggie. You can ask.

I love it when a friend not only misses me, but asks if I can come front. This really shows that I am worth something to somebody as an individual.

 I love it when singlets ask when they don't know or understand something.

 It really makes my day when somebody wants to talk to me and leaves a message with whomever was front at the time. If I can't come front for one reason or another, I can still get back to you later on. I'm a person, if I'm not here, I'll return later.

It really brightens my day when somebody actually remembers something about me instead of only remembering my group. 

 Phew. Glad to get all that off my chest.
All I want from
outsiders is to be treated like a person and valued as one. Why? Because I am a person.

 Luna Diana Combies
of
The JC Klatch


© Copyright 2012 Luna Diana Combies (UN: waxinglunacy at Writing.Com). All rights reserved. 
Luna Diana Combies has granted Writing.Com, its affiliates and syndicates non-exclusive rights to display this work.

 

We claim we are multiple, yet not DID nor MPD. Let's take a moment to break this down, and let's take a more in depth look at that claim.

 
First, let's start with MPD
.
 

 
Multiple Personality Disorder.


 Multiple: Yes, we are multiple. There are more than one person living in this one, shared body.


 Personality: This is a grey area...
per·son·al·i·ty
noun, plural -ties
.
1. the visible aspe
ct of one's character as it impresses others: He has a pleasing personality.
2. a person as an em
bodiment of a collection of qualities: He is a curious personality.
3.
Psychology .
a.the sum total of the physical, mental, emotional, and social characteristics of an individual.
b. the organized
pattern of behavioral characteristics of the individual.
4. the quality of being a person; existence as a self-conscious human being; personal identit
y.
 5.The essential character of a person.

In one definition, a personality is a collection of characteristics. We are more than collections of characteristics.
In another definition, a personality is the state and quality of being a person. In that sense, we would be personalities.
For the sake of this article, we'll say yes to this one. Personalities, ok.

 
Disorder: We
are not disordered!

 dis·or·der
[dis-awr-d er] Show IPA
noun
4. a disturbance in physical or mental health or functions; malady or dysfunction: a mild stomach disorder.

A disturbance in physical or mental health or functions. Our multiplicity does not disrupt our abilitie
s to think rationally, hold a job, interact in public, keep social relationships and friendships, conduct necessary business such as banking or keeping appointments, or even reacting to outside emergencies. It doesn't disrupt our daily life! Some of us, individual, have other issues that impede life at times (such as my PTSD symptoms), but the state of being multiple is not the cause of any of our daily life issues. Everyone has problems, we're no exception - but our multiplicity isn't one of those problems.

 
 
Let's break do
wn D.I.D.
Dissociative Identity Disorder

Dissociativ
e: We don't consider ourselves dissociative.

dis·so·ci·ate
[dih-soh-shee-eyt, -see-] Show IPA verb, -at·ed, -at·ing.
verb (used with object)
1. to sever the association of (oneself); separate: He tried to dissociate himself from the bigotry in his past.
2. to subj
ect to dissociation.
verb (used without object)
3. to withdraw from association.
4. to undergo diss
ociation.

 dis·so·ci·a·tion¢
 [dih-soh-see-ey-shuhn , -shee-ey-] Show IPA
noun
4. Psychiatry . the splitting off of a group of mental processes from the main body of consciousness, as in amnesia or certain forms of hysteria.

Let's pick these apa
rt. To sever association of oneself. What would that even mean? I'm myself. I didn't sever anything to be myself.
Ok, so the splitting off of a group of mental processes from the main body of consciousness. My consciousness, all of what makes me Miakoda, has always been as it is now. I didn't originally have the name Miakoda, but I have always been the I that I am! I've grown and matured as a person, but I am me. My headmates have each done the same. They've always been as they each a
re, just growing and maturing as people. There was no "splitting off". We are as we are.
...With one single exception. Seventeen. He is not an original member of our system. He was added here later by an outsider for the purpose of manipulating those who were already here. Seventeen is
made from Kate. If you would like to consider him a dissociation, we won't object. However, he will disagree. He considers himself something else.


Identity:
 Another
grey area, just like "personalities".

i·den·ti·ty
[ahy-den-ti-t
ee, ih-den-] Show IPA
noun, plural -ties.
1.the state or fact of remainin
g the same one or ones, as under varying aspects or conditions: The identity of the fingerprints on the gun with those on file provided evidence that he was the killer.
2. the condition of being oneself or itself, and not another: He doubted his own identity.
3. condition or character as to who a person or what a thing is: a case of mistaken identity.
4. the state
or fact of being the same one as described.
5. the sense of self, providing sameness and continuity in personality over time and sometimes disturbed in mental illnesses, as schizophrenia.

 We think of ourselves as more than just identities.  I, Miakoda, being different than Jenn or Rebecca, is in no way shape or form the same as the other screen name, the other identity, I have on some web sites of a private nature.
However, if you look at the definition "the condition of being oneself", I am definately one self myself, with other selves who are not part of me.
Identity.... We consider ourselves more than just identities, we're people.

Disorder: Since
I already covered Disorder for M.P.D., I won't cover it again here. It means the same in both.

Now let's take a peek at the criterion for D.I.D.: I will address each one seperately.

1. Disruption of identity cha
racterized by two or more distinct personality states (one can be the host) or an experience of possession, as evidenced by discontinuities in sense of self, cognition, behavior, affect, perceptions, and/or memories. This disruption may be observed by others, or reported by the patient.

This criterion
assumes that a body should only have 1 "identity", 1 person in it. That's false right there.
However, there are more than one distinct people in this body with their own senses of self, their own memories, etc. I'll mark this criterion as a yes for us.


 2. Inability to recall important personal information, for everyday events or traumatic events, that is inconsistent with ordinary forgetfulness.

Each of us has
our own memories. If I was front, I remember it within reason. If you ask about things I was not front for, I can ask my headmates for you if you are currently talking to me. We can each just ask whomever was front for the info.  This criterion is a NO!


3. Causes clinically significant distress and impairment in social, occupational, or other important areas of functioning.

 We love this criterion! This is unanimously our favorite criterion of all time for anything ever!
We hold a job,
we have friends, we've dated (SEPARATELY!), we go out in public, WE HAVE A LIFE, A DECENT LIFE!
Most of the people in our life know us individually! Here's the shocker... It has NO NEGATIVE IMPACT ON OUR DAILY LIFE! NONE!
Our friends love us! Our cl
ients at work like us! We're not lost in the middle of the city with no idea how we got there!
We take not
es if we need to keep continuity. We hand off information before we switch, such as where we are, where is our car if we brought it, who are we with, why are we where we are and why are we with who we're with!
At work, our call
sheet is marked so the next one front knows exactly what is done, what needs to be done, and where in our schedule we're currently at.
In other words, when it comes to being multiple, we have our shit together!
This is not to say we're perfect at it. Yes, some days we fail. However, our "bad days" are no worse nor more frequent than any singlet having an "off day".
Even better, when we do have an error, we each know how to correct the situation and get back on track. The effect is minimal.
In fact, our multiplicity has given us an advantage! At work, one of us is tired, switch. 2 computers at the same location? We can co-front and rip both apart simultaneously! One of us is stumped at work? There's a handful of additional minds to run the problem past!
Our multiplicity is not a disruption of our daily life!


4. The dist
urbance is not a normal part of a broadly accepted cultural or religious practice and is not due to the direct physiological effects of a substance (e.g., blackouts or chaotic behavior during alcohol intoxication) or a general medical condition (e.g., complex partial seizures). NOTE: In children, the symptoms are not attributable to imaginary playmates or other fantasy play.

 Ok, well, we're not on drugs and we're not channelling other spirits, and these aren't imaginary friends. Number 4 is a yes.


 All that being said, we just do not fit D.I.D. or M.P.D.
Does this m
ake us better than systems who do? Absolutely not!
We just feel our multiplicity is not something in need of repair. Just because our white car isn't the same color as the blue car next to it does not mean it's white paint is broken and needs to be fixed. The same here. Just because we aren't the same as other people does not mean we are broken and need help.
We are multiple. We are happy being multiple. We are functional in our multiplicity.
© Copyright 2012 Hello Miakoda (UN: hellomiakoda at Writing.Com). All rights reserved. 
Hello Miakoda has granted Writing.Com, its affiliates and syndicates non-exclusive rights to display this work.


 








 The Forensic Evaluation of Dissociation and Persons Diagnosed with Dissociative Identity Disorder: Searching for Convergence
Psychiatric Clinics of North America - Volume 29, Issue 1 (March 2006) - Copyright © 2006 W. B. Saunders Company

Arguably, som
e of the most interesting developments in the biology of DID come from brain imaging studies using positron emission tomography, MRI, and hexamethylpropyleneamine oxime single photon emission CT. Although many such studies concern single case presentations [36], [37], [38], an increasing number of studies examines larger cohorts of patients diagnosed with DID [39], [40], [41] and compares patients diagnosed with DID to simulators [40]. Results of these studies suggest that cerebral blood flow may vary for DIDs as a function of alternate personalities and that the reported cerebral blood flow differences may discriminate between DIDs and normal controls or simulators. Hypothesized blood flow differences in the temporofrontal cortex and structural differences in the hippocampus are reported [36], [3 7], [38], [39], [40].
Neurobiologic studies of DIDs versus controls or simulators also demonstrate differential findings regarding alternate personalities [36], [37], [38], [39], [40], [41], “switching” between personalities [38], and amnesia between alternate personalities [42], [43], [44], [45], [46], [47]. In addition, there are studies of neurobiologic anomalies (eg, electroencephalogram abnormalities [48] and hypnotic capacity using the eye-roll techniq
ue [49]). Finally, neurobiologic studies have discriminated successfully between DID, seizures, and pseudoseizures [50], [51].
[36]

 

 


 

 






 


 


 







 
 

 







 Activism is fighting on when you don't feel like it, when you're too
tired, too screwed-up in
your own head to fight. It's admitting you're
screwed-up in your own head. It's not for your vindettas or grudges.
(We have trouble with this one.)
It's not for your bit
ching out other members of the oppressed group.
It's understanding that even in oppressed groups there is privilege,
that some group
s within the oppressed group have got more advantages
than others, and acknowledging those instead of trying to shove them
under the rug or flaunt them.
It's to realizing if you have an advantage and trying to help someone
who doesn't.
Activism is standing up for yourself, understanding there's no damn
way that you can please everyone.
It's digging in your heels and refusing to be budged, but picking your
battles wisely e
nough to know which ones to focus on.
It's taking th
ings tiny chunks at a time, and not forgetting to
celebrate tiny victories.
It's lighting a candl
e for the guy who offed himself in his bedroom
before you got your head out your ass and realized that he was begging
you for help thirty seconds too fucking late, after the words were
already out of your mouth.
It's realizing that text has tone and that everyone's words have power
no matter how powerless you believe your own words to be.
It's knowing when to use your words for a weapon and when to back down
with grace.
It's about not being afraid to say to someone "Calm down." and knowing
when to say it.
It's to free expression and to controlling yourself enough to act like
civil adults.

 It's to realizing that sometimes no matter what you do, they're all
going to think you're fucking insane.
It's to realizing that sometimes a poorly chosen word can blow the
whole shitpile sky-high.

 It's respecting the people who blazed a path before you, building off
their ideas when you can, but never staying stagnant.
It's to comin
g up with new ideas, new ways to reach out, to beating
your head against the brick wall till you make a hole.
It's to backing down when you can't.
It's to breaking a window when you can't open a door.
It's to being fucking glad for every tiny thing that gets your cause
noticed, even if it's hidden in oppressor language.
It's to giving everyone a voice but understanding that some of them
will use it to giv
e the whole fucking group a bad name and hoping
there're enou
gh that aren't jackasses to make it all fly.
It's to never resting on your laurels. It's to knowing when to hang
onto those reins for dear life, and when to let them lax so that
someone else can pull the wagon for a while, but never giving up,
because you are an i
nspiration, whether you signed up for that job or
not.
Activism is watching your own heart break over and over but still
managing to pick up the pieces and rebuild it with other people's
inspiration.
And maybe most importantly, activism is building a shell to keep
yourself safe, but not letting bitterness, jadedness and pure-ass
spite, either toward yourself, your situation, other oppressed people
or even toward the oppressors blind you to what truly is important.
*We have difficulty with
this one too.*
And activism
? is asking yourself what truly is important.
Activism is also knowing when you need to quit or back down either
temporarily or permanently, and not pushing beyond that point and
taking care of yourself/ves and your safety/sanity first.

 If you read this, have cookies.

-Mark and GY

 



 







One Brain Two Selves

DOI: 10.1016/j.neuroimage.2003.08.021

Abstract:

Having a sense of self is an explicit and high-level functional specialization of the human brain. The anatomical localization of self-awareness and the brain mechanisms involved in consciousness were investigated by functional neuroimaging different emotional mental states of core consciousness in patients with Multiple Personality Disorder (i.e., Dissociative Identity Disorder (DID)). We demonstrate specific changes in localized brain activity consistent with their ability to generate at least two distinct mental states of self-awareness, each with its own access to autobiographical trauma-related memory. Our findings reveal the existence of different regional cerebral blood flow patterns for different senses of self. We present evidence for the medial prefrontal cortex (MPFC) and the posterior associative cortices to have an integral role in conscious experience.

Citation:

One brain, two selves.
Reinders AA - Neuroimage - 01-DEC-2003; 20(4): 2119-25
MEDLINE® is the source for the citation and abstract of this record

NLM Citation ID:
14683715 (PubMed ID)

Full Source Title:
NeuroImage

Publication Type:
Clinical Trial; Journal Article; Research Support, Non-U.S. Gov't

Language:
English

Author Affiliation:
Department of Biological Psychiatry, Groningen University Hospital, The Netherlands. a.a.t.s.reinders@med.rug.nl

Authors:
Reinders AA; Nijenhuis ER; Paans AM; Korf J; Willemsen AT; den Boer JA
















A New Model of Dissociative Identity Disorder

Psychiatric Clinics of North America - Volume 29, Issue 1 (March 2006)  -  Copyright © 2006 W. B. Saunders Company  -  About This Journal Add Journal Issue Alert
DOI: 10.1016/j.psc.2005.10.013

IMPLICATIONS OF THE PRESENT STUDY FOR THE SOCIOCOGNITIVE MODEL OF DISSOCIATIVE IDENTITY DISORDER

For the last decade, proponents of the sociocognitive model [76], [77], [78], [79], [80], [81], [82] have argued that DID is caused by social influence:

DID is a socially constructed condition that results from inadvertent therapist cueing (eg, suggestive questioning regarding the existence of possible alters), media influences (eg, film and television portrayals of DID), and broader sociocultural expectations regarding the presumed clinical features of DID. For example, proponents of the sociocognitive model believe that the release of the book and film Sybil in the 1970s played a substantial role in shaping conceptions of DID in the minds of the general public and psychotherapists [77].

The sociocognitive model of DID is necessarily wed to the DSM-IV's model of classic DID. Why? Because the general culture's model of DID is classic DID. Classic DID is clearly reflected in Sybil. Classic DID has also been reflected in countless portrayals of DID in contemporary films and television programs. In short, the DSM-IV's essential phenomena of classic DID (ie, multiple personalities + switching + amnesia) are very familiar to the general culture.
Although not intended as such, the present findings refute the sociocognitive model of DID because 15 of the 23 subjective dissociative symptoms that were measured (the criterion A symptoms except for trance and the criterion B symptoms except for self-alteration; see Box 1) are invisible (ie, completely experiential), unknown to the media, unknown to the general public, and largely unknown to the mental health field. Nevertheless, these 15 subjective dissociative symptoms occurred in 83% to 95% of persons who had DID (Table 2). The pervasive presence of these symptoms cannot be explained (away) by the sociocognitive model's “usual suspects”—therapist cueing, media influences, and sociocultural expectations regarding the clinical features of DID. There can be no therapist cueing, media influences, or sociocultural expectations about dissociative symptoms that are invisible, unknown to the media, unknown to the culture, and largely unknown to the mental health field.
The sociocognitive model explains and predicts the classic signs of DID, but the sociocognitive model neither predicts nor can explain (1) most of the empirical literature's well-replicated dissociative symptoms of DID (Table 1), (2) most of the subjective/phenomenological dissociative symptoms of DID (Box 1), or (3) most of the findings of the present study. In contrast, the subjective/phenomenological model of DID predicts and explains all of the symptoms of classic DID, all 13 of the well-replicated empirical findings about DID (Table 1), all 23 of the subjective/phenomenological dissociative symptoms in Box 1, and all 23 of the dissociative findings of the present study (Table 2).
On the grounds of greater verisimilitude—most importantly, its ability to predict a large number of dissociative phenomena that cannot be predicted by either the DSM-IV model of DID or the sociocognitive model of DID—the subjective/phenomenological model of DID should be considered superior, and the sociocognitive model of DID must be judged to be refuted.

  

LIMITATIONS

The strength of the present study is limited by two aspects of its methodology. First, the study is primarily based on a clinically-diagnosed sample of DID cases (rather than a sample of DID cases that were diagnosed with a structured interview such as the SCID-D-R). Fig. 1, however, demonstrates that there is a remarkable resemblance between the 220 patients who had DID who were clinically diagnosed and the 41 who were diagnosed by the SCID-D-R. Still, the SCID-D-R was administered in a clinical setting by therapists who were not blind to the patients' presenting symptoms, and was not subject to reliability checks across raters. Second, the present study did not employ SCID-D-R-diagnosed comparison groups (eg, general psychiatric patients, nonclinical adults, patients who had other dissociative disorders). Gast and colleagues [70], however, did use SCID-D-R-diagnosed comparison groups in their investigation of the diagnostic efficiency of the German MID. Their results replicated those of the present study. In a sample comprised of patients who had DID, patients who had DDNOS-1, general psychiatric patients, and nonclinical adults, Gast and colleagues reported that the dissociative symptoms in Box 1 (as assessed by the G-MID) had a positive predictive power of 0.93, a negative predictive power of 0.84, and an overall predictive power of 0.89 for major dissociative disorder (DID or DDNOS-1).
Table 2 . Incidence of 23 dissociative symptoms in 220 persons who have dissociative identity disorder
MID scale SCID-D n = 41 Total sample n = 220 Outpatients n = 161 Inpatients n = 57
Mean number of symptoms 19.7 20.2 19.9 21.3
SD 4.7 4.5 4.8 3.2
Percent incidence of each symptom
General dissociative symptoms:
Memory problems (5/12)a 100 94 93 98
Depersonalization (4/12) 95 95 94 98
Derealization (4/12) 93 92 89 98
Posttraumatic flashbacks (5/12) 93 92 90 96
Somatoform symptoms (4/12) 83 83 81 88
Trance (5/12) 88 87 84 96
Partially-dissociated intrusions
Child voices (1/3) 95 95 94 95
Internal struggle (3/9) 100 96 95 98
Persecutory voices (2/5) 88 90 87 96
Speech insertion (2/3) 85 83 81 86
Thought insertion/withdrawal (3/5) 93 91 90 95
“Made”/intrusive emotions (4/7) 95 91 90 96
“Made”/intrusive impulses (2/3) 85 89 87 93
“Made”/intrusive actions (4/9) 98 95 93 98
Temp loss of knowledge (2/5) 90 82 80 91
Self-alteration (4/12) 98 95 94 98
Self-puzzlement (3/8) 98 95 93 98
Fully-dissociated intrusions (ie, amnesia)
Time Loss (2/4) 88 88 87 89
“Coming to” (2/4) 78 79 75 88
Fugues (2/5) 83 75 71 86
Being told of actions (2/4) 85 86 85 88
Finding objects (2/4) 61 74 72 77
Evidence of actions (2/5) 71 77 76 81
Table 2 . Incidence of 23 dissociative symptoms in 220 persons who have dissociative identity disorder
MID scale SCID-D n = 41 Total sample n = 220 Outpatients n = 161 Inpatients n = 57
Mean number of symptoms 19.7 20.2 19.9 21.3
SD 4.7 4.5 4.8 3.2
Percent incidence of each symptom
General dissociative symptoms:
Memory problems (5/12)a 100 94 93 98
Depersonalization (4/12) 95 95 94 98
Derealization (4/12) 93 92 89 98
Posttraumatic flashbacks (5/12) 93 92 90 96
Somatoform symptoms (4/12) 83 83 81 88
Trance (5/12) 88 87 84 96
Partially-dissociated intrusions
Child voices (1/3) 95 95 94 95
Internal struggle (3/9) 100 96 95 98
Persecutory voices (2/5) 88 90 87 96
Speech insertion (2/3) 85 83 81 86
Thought insertion/withdrawal (3/5) 93 91 90 95
“Made”/intrusive emotions (4/7) 95 91 90 96
“Made”/intrusive impulses (2/3) 85 89 87 93
“Made”/intrusive actions (4/9) 98 95 93 98
Temp loss of knowledge (2/5) 90 82 80 91
Self-alteration (4/12) 98 95 94 98
Self-puzzlement (3/8) 98 95 93 98
Fully-dissociated intrusions (ie, amnesia)
Time Loss (2/4) 88 88 87 89
“Coming to” (2/4) 78 79 75 88
Fugues (2/5) 83 75 71 86
Being told of actions (2/4) 85 86 85 88
Finding objects (2/4) 61 74 72 77
Evidence of actions (2/5) 71 77 76 81

The Scope of Dissociative Disorders: An International Perspective


Vedat Sar, MD



Clinical Psychotherapy Unit and Dissociative Disorders Program, Medical Faculty of Istanbul, Istanbul University, 34390 Capa, Istanbul, Turkey
E-mail address:  vsar@istanbul.edu.tr




PII S0193-953X(05)00090-0


In contrast to the meaning that the unfortunate term “posttraumatic stress disorder” imposes, trauma is not identical with a noxious event [1]. It is a complex sociopsychologic process with subjective and objective components following traumatic experience that is embedded in past, present, and future. A comprehensive definition of psychic trauma is the loss of cohesion in internal world, in external reality, and between them; creating loss of psychic harmony in a given time point and across the life span. In that sense, trauma and dissociation are concepts that dissolve in each other [2]. An approach to trauma without understanding dissociation remains meaningless from both psychiatric and sociopsychologic point of views. Extracting dissociation from concepts and adaptations of everyday life or from general psychopathology empties its content and marginalizes it (ie, it is a disservice to both the traumatized person and the professional who wants to help them).
This issue includes a special article about culture-bound aspects of dissociation (see the article by Somer elsewhere in this issue). This article is concerned mainly with the documentation of the universality of dissociative disorders as presented by empirical studies conducted in various countries using standardized assessment instruments. The similarities between dissociative patients in various cultures are obvious [3], [4]. Cultural differences between perceptions and conceptualizations of researchers and mental health professionals in psychiatry are higher than those in any other medical specialty. This seems to be the main reason why dissociative disorders have been considered by some authors as culture bound syndromes; somewhat paradoxically, either as a merely North American disorder or a premodern phenomenon seen in exotic cultures, primitive societies, or mystic-religious communities. Modern pioneers of the field initiated a rising wave of dissociation studies in North America in the 1980s, to be slowed down in 1990s by the so-called “backlash” movement, which has been balanced by a steadily enlarging and emerging international research. Large-scale systematic studies on dissociative disorders in this initial period of international research flourished mainly in The Netherlands [3], Turkey [4], and Germany [5]. Case series also have been published from Switzerland [6] and Australia [7]. Case presentations and many other contributions continue to come from many countries throughout the world. This article does not claim to be an exhaustive one. Rather, to elucidate the way for future research, it tries to evaluate the key aspects of this mosaic of clinical and scientific endeavors.
Most of the screening studies on dissociative disorders have been conducted in clinical settings (Table 1). Studies on dissociative disorders in Istanbul, Turkey, yielded prevalence slightly above 10% among psychiatric inpatients and outpatients [8], [9], [10]. Although still considerable, these rates were lower in The Netherlands [11], Germany [5], and Switzerland [6] among inpatients (between 4.3% and 8%). A Finnish study [12] reported higher rates for psychiatric outpatients (14%) and inpatients (21%). A study conducted among emergency admissions in Istanbul yielded the highest rate (35.7%) [13].

Table 1 . Summary of dissociative disorder prevalence studies among psychiatric patients in four countries: Turkey, Switzerland, Germany, and The Netherlands
Dissociative experiences scale score
Study % Inclusion rate Number of subjects Diagnostic instrument Cutoff on dissociative experiences scale % Rate of dissociative identity disorder Rate of dissociative disorder mean SD > %DESb
Psychiatric inpatients
Tutkun et al [8] 63.6 166 DDIS 30 5.4a 10.2a 17.8 14.9 14.5
Modestin et al [6] 207 DDIS 20 0.4 5 13.7 13.5 12
Gast et al [5] 115 SCID-D 20 0.9 4.3 21.7
Friedl and Draijer [11] 50.4 122 SCID-D 25 2 8 20 18.1 29.5
Psychiatric outpatients
Sar et al [9] 81.5 150 DDIS 30 2a 12a 15.3 14 15.3
Sar et al [10] 79.5 240 SCID-D 25 2.5 13.8 20 18.9 27.9
Psychiatric emergency unit
Sar et al [13] 43.3 44 SCID-D 25 13.6 35.7 23.3 19.1 38.6
Abbreviations: DDIS, Dissociative Disorders Interview Schedule; DES, Dissociative Experiences Scale; SCID-D, Structured Clinical Interview for Dissociative Disorders.
a  Clinically confirmed diagnosis.
b  Percentage of patients with a Dissociative Experiences Scale score above cutoff point.
Two large-scale studies conducted in the general population of Sivas, Turkey, provided detailed information about the prevalence of all dissociative disorders in the community. The first one was conducted on a representative sample of 994 participants from both genders [14]. Although there was no difference in average Dissociative Experiences Scale (DES) scores between genders, there were two times more women than men among high scorers. The second study was conducted on a representative female sample of 648 participants in the same city using a structured diagnostic interview (ie, the Dissociative Disorders Interview Schedule) [15]. The overall prevalence of dissociative disorders was 18.3%. The largest group was Dissociative Disorder not Otherwise Specified (DDNOS) (8.3%). A total of 7.3% of the population reported having had dissociative amnesia at least once throughout their life. The prevalence of depersonalization disorder was 1.4%, whereas 1.1% of the population had Dissociative Identity Disorder (DID). Conditions based primarily on presence of distinct personality states (ie, DID and allied forms of DDNOS) together built up a prevalence of 5.2%. Only one proband (0.2%) had dissociative fugue as a solitary phenomenon; when present it was usually part of a more complex dissociative disorder (DID or DDNOS).
In The Netherlands, 378 subjects from a nonclinical population were screened using the Dissociation Questionnaire, a self-rating scale of European origin [16], [17]. A total of 2.1% of the participants had a score above the cutoff point (score of 2.5), and 0.5% had a score comparable with those of patients with dissociative disorders (scores of 3 or higher). Of the eight high scorers, seven were women. A total of 2.9% of the women and 0.7% men had scores above the 2.5 cutoff, a ratio of 4 to 1. In a large general psychiatric population in Germany [18], there were no significant gender differences in the distribution of high dissociators.
In Germany, a screening study was conducted on 51 male criminal offenders admitted to a medicolegal institution by the court so as to understand diminished or lack of responsibility for the offense because of psychiatric disorder, including a large group of persons with substance-use disorders [19]. Using the Structured Clinical Interview for Diagnostic and Statistical Manual (DSM)-IV Dissociative Disorders [20], a high prevalence of dissociative symptoms and disorders (23.5%), mostly DDNOS, were demonstrated. A total of 22.6% of the group had a DES score 20 or higher. In Turkey [21] 26.8% of 108 male prisoners in a regular correctional center had a DES score 20 or above. This rate was 18.5% for DES scores 30 or above. According to the Structured Clinical Interview for DSM-IV Dissociative Disorders, 15.7% of the subjects had a dissociative disorder, either DDNOS (N = 10) or dissociative amnesia (N = 7). Interestingly, only 2.8% of the prisoners fit the DSM-III-R borderline personality disorder criteria, whereas this rate was 28% for antisocial personality disorder and 66.4% for lifetime posttraumatic stress disorder diagnosis [21].
Overall, independent studies from various countries clearly demonstrate that dissociative disorders constitute a common mental health problem not only in clinical practice but also in the community. The lack of dissociative disorder sections in commonly used general psychiatric screening instruments has led to the omission of dissociative disorders in large-scale epidemiologic studies. Although studies using specific instruments have began to correct this perception, the inclusion of dissociative disorders in general psychiatric screening studies will help to gather detailed information about comorbidity issues (see the article by Sar and Ross elsewhere in this issue). Differences between rates obtained in various settings may be related to differences in treatment-seeking behavior and in mental health delivery systems. In particular, the relatively high prevalence of DDNOS both in clinical settings and in the community points to the necessity for a thorough revision in the DSM-IV dissociative disorders section.


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